Tag Archives: Preemie

2.5 Years Later – A follow up on my preemie baby’s development

2.5 Years Later - A follow up on my preemie baby's development

2.5 years ago, Harley came into the world in truly dramatic fashion. I was 32 weeks pregnant when I had seizures brought on by full-blown eclampsia. LIke, the thing after preeclampsia. An emergency c-section later, Harley was born, eight weeks premature.

I had never imagined that I would have a premature baby, and I knew absolutely nothing about it. A first-time mom, I was terrified of everything it could or would mean. I read all about possible complications, developmental hurdles or other issues. I wanted to be prepared.

It was terrifying. Eventually, I had to stop reading because I was so worried, upset and afraid of what the future MIGHT hold for Harley. Instead, I focused on doing what I could to get her through the time in the hospital. And then just surviving our early days and weeks.

Now, 2.5 years later, Harley is amazing, and you would never guess she was a prem baby. I thought I would share a bit about her, how she has surpassed all expectations and where she falls on her milestones. So, if you are just taking things day by day with your prem baby, I hope this helps you imagine a less terrifying version of what the future might hold with your preemie baby’s development. Continue Reading

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A year at home

a year later

Last Friday was a very special kind of anniversary – it was a year since we brought Harley home from the hospital. It’s funny looking back, realizing how little we knew, how we truly didn’t know what we were in for. No matter what anyone says, nothing can prepare you for a newborn, and a preemie in particular. Now, a year later, our lives are so different, Harley is so different. Things have gotten so much easier, and also so much harder in other ways. It’s all part of the journey, but with Harley home for a year now, I thought I’d look back at those dark early days a bit, and also at how things are right now.

The past couple days with Harley have been tough. She isn’t sleeping too well – not horribly, but not great. I think she is teething quite badly, plus she is about to hit a major developmental leap which always makes her a bit impossible. She gets upset quite easily, cries more often and is generally just clingy and cranky. However, it is still a million times easier than it was back when we first brought her home. Sure, she can crawl off now, and get into things she shouldn’t (she ejected my PS4 game yesterday, much to my horror… time to move the console!) but she can also interact, smile, play and have a lot more fun than she used to. Continue Reading

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World Prematurity Day – An open letter to Harley’s NICU nurses

Dearest sisters,

I came around for a visit to the NICU with Harley yesterday, wanted to show off just how big she’s gotten. I wanted to show you all how far she’s come, how much she’s grown. I brought a cake and snacks and whatever else I could think of that would be nice for the team, a nice treat for all of you. But nothing I could buy, nothing I could give you could ever compare with what you gave to me. It was so wonderful seeing you all, taking pictures of you with an almost-year-old Harley – even if she did cry in all the pictures.

Growing up, I remember seeing donation tins for The March of Dimes. They used to be next to the check out counters in the drug stores in New York, and I would always look at them, but never really noticed what they were about. In fact, even last year I didn’t really pay attention to this day. I was already a mommy blogger, and I saw some of the other moms writing about it, but I don’t think I even read the posts. Oh how times have changed. Continue Reading

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How this mommy and baby class saved me and Harley

Toptots

With Harley now seven months old, I have enough distance from those early weeks and months to look back with some perspective. I’ve written about how traumatic her birth experience was, but even then I didn’t realize how traumatic it was and how hard it was going to make things with her. I was sick, she was so very premature, and we had quite a road ahead of us. I struggled to bond with her, I felt like everything was just so hard, and I was even resenting her. It was NOT good.

Luckily, while still pregnant, I had already decided that I wanted to try and find a nice mommy and baby class to attend once she was born. There are so many out there, so I wasn’t quite sure which one I’d go for. But I chatted to Geoff, my editor at Lazygamer, and his wife used to own a TOPTOTS franchise, so I decided to give them a whirl. It turns out, that was one of the best decisions I’ve made in the first six months of Harley’s life. Continue Reading

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Being “normal” as a preemie

breaking the normal mold

I was not expecting to have a preemie. It was not part of my plan, but it was medically necessary. After I got home from the hospital, I started reading up on preemies, and it was pretty scary stuff – there were so many articles and books about the challenges that are common for premature babies, and I was feeling so sad for my little princess. It was hard enough to see her so very tiny, filled with tubes and sensors in the NICU, but the idea that her struggle would continue long after she was home… it just broke my heart.

When she was still in the hospital, I remember a physiotherapist came in the one day and started chatting to me. She explained that premature babies do eventually catch up, but that you need to adjust for their age – instead of sitting by six months it would be six months from the due date, etc. That wasn’t so bad, and that’s how I thought of Harley for a while – as her real age and her “adjusted age”. But I’m not sure I need to keep doing that. Continue Reading

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